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	<title>BTAS &#187; feeding</title>
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		<title>State of Miles: July 09</title>
		<link>http://www.breathingthroughastraw.com/2009/07/13/state-of-miles-july-09/</link>
		<comments>http://www.breathingthroughastraw.com/2009/07/13/state-of-miles-july-09/#comments</comments>
		<pubDate>Mon, 13 Jul 2009 11:59:43 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[bodily functions]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[personal]]></category>
		<category><![CDATA[happiness]]></category>
		<category><![CDATA[physiology]]></category>
		<category><![CDATA[reflux]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=51</guid>
		<description><![CDATA[Things are going good. After trying out many different combinations of formula with rice cereal and probiotics, we&#8217;ve finally gotten some consistency with feeding and pooping.
Miles is showing more and more signs of being a happy child. He now takes breaks during feeds to smile at us. And he&#8217;s doing so with more than just [...]]]></description>
			<content:encoded><![CDATA[<p>Things are going good. After trying out many different combinations of formula with rice cereal and probiotics, we&#8217;ve finally gotten some consistency with feeding and pooping.</p>
<p>Miles is showing more and more signs of being a happy child. He now takes breaks during feeds to smile at us. And he&#8217;s doing so with more than just his mouth. His whole face lights up&#8230; it&#8217;s wonderful.</p>
<p>He is also still rolling over from front to back. On a few occasions (while lying on his back), he has lifted a leg up and pulled an arm across his body. Seems like he is gearing up for a back to front roll. I&#8217;ve helped him complete the maneuver a few times, but nothing he hasn&#8217;t gone solo yet. No big deal, he&#8217;d be way ahead of the game if he did it now, anyways.</p>
<p>We also have an excellent sleeper on our hands. He is typically going down for bed around 7pm and not waking up until 5 or 6 in the morning. As you could imagine, we thank our lucky stars for this.</p>
<p>It hasn&#8217;t all been roses, though. There were 2 nights this last week when Miles had some major reflux freak-outs. At least, we think it was reflux-related. It was around bed time when he would suddenly begin wailing in pain. A few gulping swallows later, he&#8217;d be calm as a caterpillar. Five minutes after that, he&#8217;d be wailing again.</p>
<p>All in all, the State of Miles is strong.</p>
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			<wfw:commentRss>http://www.breathingthroughastraw.com/2009/07/13/state-of-miles-july-09/feed/</wfw:commentRss>
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		<title>A Regular Feeding (sort of)</title>
		<link>http://www.breathingthroughastraw.com/2009/06/25/a-regular-feeding-sort-of/</link>
		<comments>http://www.breathingthroughastraw.com/2009/06/25/a-regular-feeding-sort-of/#comments</comments>
		<pubDate>Thu, 25 Jun 2009 21:59:52 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[personal]]></category>
		<category><![CDATA[bacteria]]></category>
		<category><![CDATA[digestion]]></category>
		<category><![CDATA[formula]]></category>
		<category><![CDATA[poop]]></category>
		<category><![CDATA[probiotics]]></category>
		<category><![CDATA[reflux]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=46</guid>
		<description><![CDATA[We&#8217;ve exhausted the Alimentum and didn&#8217;t see much improvement in Miles&#8217; reflux or squirminess following feedings. So, we&#8217;re back to the Genltlease formula. Only this time, we&#8217;re adding Probiotics. According to the doc (and various other online sources), the Probiotics are healthy bacteria that will help Miles break down his food in a more efficient [...]]]></description>
			<content:encoded><![CDATA[<p>We&#8217;ve exhausted the Alimentum and didn&#8217;t see much improvement in Miles&#8217; reflux or squirminess following feedings. So, we&#8217;re back to the Genltlease formula. Only this time, we&#8217;re adding Probiotics. According to the doc (and various other online sources), the Probiotics are healthy bacteria that will help Miles break down his food in a more efficient manner. The hope is that it will speed up his digestion and limit the amount of time that reflux can happen.</p>
<p>So far, so good. He is less squirmy post-feeding that he used to be, and he is pretty much finishing all of his bottles in a timely manner. The best part is that his poop is once again exiting at a normal pace.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.breathingthroughastraw.com/2009/06/25/a-regular-feeding-sort-of/feed/</wfw:commentRss>
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		</item>
		<item>
		<title>A Pooping Machine</title>
		<link>http://www.breathingthroughastraw.com/2009/06/17/a-pooping-machine/</link>
		<comments>http://www.breathingthroughastraw.com/2009/06/17/a-pooping-machine/#comments</comments>
		<pubDate>Wed, 17 Jun 2009 13:48:53 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[bodily functions]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[digestion]]></category>
		<category><![CDATA[formula]]></category>
		<category><![CDATA[poop]]></category>
		<category><![CDATA[reflux]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=44</guid>
		<description><![CDATA[We&#8217;ve been trying various methods to control/eliminate Miles&#8217; reflux symptoms. We&#8217;ve tried soy formula with no change in behavior, so we&#8217;ve moved on to the hypoallergenic stuff to see if the reflux is a reaction to milk proteins. The Alimentum formula is already broken down so that Miles&#8217; stomach doesn&#8217;t need to work as hard [...]]]></description>
			<content:encoded><![CDATA[<p>We&#8217;ve been trying various methods to control/eliminate Miles&#8217; reflux symptoms. We&#8217;ve tried soy formula with no change in behavior, so we&#8217;ve moved on to the hypoallergenic stuff to see if the reflux is a reaction to milk proteins. The Alimentum formula is already broken down so that Miles&#8217; stomach doesn&#8217;t need to work as hard to digest it.</p>
<p>It&#8217;s been 48 hours, and the only real change I&#8217;ve noticed is that he poops more. A lot more. It seems like every other diaper is poop. And it&#8217;s not a nice solid poop. It&#8217;s the creamy kind that gets up under (and around) his junk.</p>
<p>I&#8217;m not-so-secretly hoping that this formula doesn&#8217;t solve the reflux. I&#8217;d much rather find a cheaper and less poopy solution. Our next gambit is going to be with probiotics.</p>
<p>P.S. Alimentum smells bad</p>
]]></content:encoded>
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		</item>
		<item>
		<title>State of the Miles</title>
		<link>http://www.breathingthroughastraw.com/2009/06/09/state-of-the-miles/</link>
		<comments>http://www.breathingthroughastraw.com/2009/06/09/state-of-the-miles/#comments</comments>
		<pubDate>Tue, 09 Jun 2009 20:45:34 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[personal]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=33</guid>
		<description><![CDATA[Things are holding steady with Miles. Well&#8230; mostly, anyhow. He&#8217;s still rolling over from belly to back, so it&#8217;s good to know that the rollover we got on video wasn&#8217;t a fluke. His neck is now strong enough to sit on the bj&#246;rn face out, which makes me happy. I always enjoyed combining with Nora [...]]]></description>
			<content:encoded><![CDATA[<p>Things are holding steady with Miles. Well&#8230; mostly, anyhow. He&#8217;s still rolling over from belly to back, so it&#8217;s good to know that the rollover we got on video wasn&#8217;t a fluke. His neck is now strong enough to sit on the bj&ouml;rn face out, which makes me happy. I always enjoyed combining with Nora to make the Nora 2000 daddy bot. Now, it&#8217;s Miles&#8217; turn.</p>
<p>He&#8217;s still been having some reflux issues, so we&#8217;re trying out Prilosec instead of Zantac. It&#8217;s been a week, and there&#8217;s not much change. Sarah things the Prilosec might even be worse than the Zantac.</p>
<p>On the plus side, he&#8217;s had a really healthy appetite. He&#8217;s been getting better with timing his breathing and swallowing. Just yesterday, I had a feeding session with him where I didn&#8217;t have to pull the bottle to give him a break. He would suck, rest and swallow all on his own.</p>
<p>Other than that, he&#8217;s sleeping and filling his diapers on a regular schedule.</p>
]]></content:encoded>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Formula: 409 Attempts</title>
		<link>http://www.breathingthroughastraw.com/2009/05/20/formula-409-attempts/</link>
		<comments>http://www.breathingthroughastraw.com/2009/05/20/formula-409-attempts/#comments</comments>
		<pubDate>Thu, 21 May 2009 02:17:06 +0000</pubDate>
		<dc:creator></dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[personal]]></category>
		<category><![CDATA[aspiration]]></category>
		<category><![CDATA[rice cereal]]></category>
		<category><![CDATA[stress]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=29</guid>
		<description><![CDATA[Miles has been having a few difficulties with feeding. His mouth is smaller, causing him to have trouble squeezing the stage 1 nipples &#8212; or in the case of Vent Aire bottles, &#8220;slow&#8221; stage. It was taking him an hour or more to down a single ounce with those. So, we moved on to the [...]]]></description>
			<content:encoded><![CDATA[<p>Miles has been having a few difficulties with feeding. His mouth is smaller, causing him to have trouble squeezing the stage 1 nipples &#8212; or in the case of Vent Aire bottles, &#8220;slow&#8221; stage. It was taking him an hour or more to down a single ounce with those. So, we moved on to the  &#8221;fast flow&#8221; nipples (We&#8217;re still not sure why Vent Aire doesn&#8217;t make a &#8220;medium flow&#8221; nipple). That was working better, but almost too fast.</p>
<p>Miles began exhibiting difficulties breathing while eating. Sometimes, it seemed like he would be choking. We tried going back to the &#8220;slow&#8221; nipples, but some of the breathing symptoms persisted.</p>
<p>We tried Doc Brown bottles, but the results were the same.</p>
<p>We tried the Avent bottles, but Miles didn&#8217;t care for the nipples.</p>
<p>Finally, we scheduled a swallow study to see if there was any way they can tell what the problem was. After trying several of the same bottle/nipple combinations we tried, they began adding rice cereal to the formula. It turns out that Miles has a case of <a href="http://en.wikipedia.org/wiki/Pulmonary_aspiration" target="_blank">Aspiration</a>. Thickening the formula with rice had helped Miles gain more control over the flow of formula so that he could time his breathing better. It all worked great at the hospital.</p>
<p>It was a different story when we got home. They suggested we do a 1-tablespoon to 1-ounce ratio of rice to formula. That seemed to be took thick for Miles at home, so we moved to 2-tablespoons per 3 ounces of formula. That has been working much better.</p>
<p>But he&#8217;s still having some breathing issues. From time to time, he will absolutely freak out and it&#8217;s as if he&#8217;s hyper ventilating (maybe he is). He gets so worked up, that trying to feed him becomes an absolute nightmare. He had the perfect feeding this morning at 5 am. Calm breathing, smooth sucking, and controlled swallowing. I took 3 ounces and burped in 20 minutes. Three hours later, all bets were off. It was as if he had forgotten what to do with the nipple and when to breathe.</p>
<p>We&#8217;re getting better with our patience, but I hope that one of these days something will click and we can take a load of stress off of our backs.</p>
]]></content:encoded>
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		</item>
		<item>
		<title>18 Days Later</title>
		<link>http://www.breathingthroughastraw.com/2009/05/08/18-days-later/</link>
		<comments>http://www.breathingthroughastraw.com/2009/05/08/18-days-later/#comments</comments>
		<pubDate>Sat, 09 May 2009 02:28:48 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[feeding]]></category>
		<category><![CDATA[personal]]></category>
		<category><![CDATA[cats]]></category>
		<category><![CDATA[physiology]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=27</guid>
		<description><![CDATA[It&#8217;s been nearly three weeks since Miles arrived, and I find myself forgetting that he has Downs. It might be because he&#8217;s usually swaddled up pretty good, so I rarely get a chance to see the rolls on the back of his neck. For me, those rolls are the only real physical reminder of his [...]]]></description>
			<content:encoded><![CDATA[<p>It&#8217;s been nearly three weeks since Miles arrived, and I find myself forgetting that he has Downs. It might be because he&#8217;s usually swaddled up pretty good, so I rarely get a chance to see the rolls on the back of his neck. For me, those rolls are the only real physical reminder of his Downs. His eyes look OK to me. Sleepy, but OK.</p>
<p>The only time it really hits me is during feeding time. He can have a pretty difficult time getting a good suction on the bottles. A lot of the time, he&#8217;ll do this weird breathing freak-out thing that sounds as if he is having an asthma attack. It can be sort of gurgly, too, so I&#8217;m always afraid that I&#8217;m drowning him in milk.</p>
<p>It usually turns out OK, though. If you give him a break from the bottle, he&#8217;ll level out and start sucking like normal.</p>
<p>At any rate, Miles has found his place in our house without much trouble. We all love him, including Nora and the cats. Well&#8230; maybe not Gordon. It took him more than a year to show any sort of affection towards Nora. Pumpkin, on the other hand, has already been spotted holding vigil next to a sleeping Miles on the floor.</p>
]]></content:encoded>
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