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	<title>BTAS &#187; trisomy 21</title>
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		<title>What&#8217;s in a name?</title>
		<link>http://www.breathingthroughastraw.com/2009/04/23/whats-in-a-name/</link>
		<comments>http://www.breathingthroughastraw.com/2009/04/23/whats-in-a-name/#comments</comments>
		<pubDate>Thu, 23 Apr 2009 19:53:34 +0000</pubDate>
		<dc:creator>Matthew</dc:creator>
				<category><![CDATA[Miles]]></category>
		<category><![CDATA[personal]]></category>
		<category><![CDATA[names]]></category>
		<category><![CDATA[trisomy 21]]></category>

		<guid isPermaLink="false">http://www.breathingthroughastraw.com/?p=6</guid>
		<description><![CDATA[At 8:28 AM CT on April 20, 2009, my wife delivered our son by c-section. He is our second child and he will be our last. My wife had her tubes tied during the delivery, and I will be getting my lines snipped in the coming weeks. Even though I wanted to revisit our options [...]]]></description>
			<content:encoded><![CDATA[						<div class="flickr-gallery image right"><a href="http://www.flickr.com/photos/tr4inspotter/3475220110"><img class="flickr small" title="090422_002" alt="090422_002" src="http://farm4.static.flickr.com/3034/3475220110_e89295b82b_m.jpg" /></a></div>
					
<p>At 8:28 AM CT on April 20, 2009, my wife delivered our son by c-section. He is our second child and he will be our last. My wife had her tubes tied during the delivery, and I will be getting my lines snipped in the coming weeks. Even though I wanted to revisit our options in the last week of pregnancy, we had effectively named him months ago.</p>
<p><strong>Miles Chauncey Wolfe</strong></p>
<p>Our use of &#8216;Chauncey&#8217; was never in question. Chauncey was Sarah&#8217;s grandfather on her dad&#8217;s side. He passed away long before I met Sarah, but if he was anything like his son (Sarah&#8217;s father), I&#8217;m sure that we would have gotten along great.</p>
<p>&#8216;Miles&#8217; was surprisingly hard to come by. I had hoped to find a good name somewhere in my family tree, but Sarah wasn&#8217;t too keen on the likes of &#8216;Harlan,&#8217; &#8216;Halvor,&#8217; or &#8216;Arno.&#8217; The closest we could come on any Wolfe or Wiesner names was &#8216;Everett,&#8217; and that just didn&#8217;t work as well with &#8216;Chauncey.&#8217; In the end, we chose &#8216;Miles&#8217; from a growing list of about 20 names that we had written down over the months. It&#8217;s a clean and short name that works well with Nora (his older sister). And even though his initials now make him sound like a mid-90&#8217;s rapper, the full name sounds perfect to our ears.</p>
<p>As it happens, the Latin root of &#8216;Miles&#8217; means &#8217;soldier,&#8217; while the Germanic root suggests &#8216;uncertain&#8217; or &#8216;peaceful.&#8217; So far, he&#8217;s all three. Miles was born with trisomy 21&#8230; more commonly known as <a href="http://en.wikipedia.org/wiki/Down_syndrome" target="_blank">down syndrome</a>.</p>
<p>Thus far, Miles has been an easy going baby. He&#8217;s mostly quiet and content to sit and observe. He&#8217;s been poked and prodded by the doctors a number of times and has spent the better part of a day under UV lights to treat some jaundice. DNA lab tests have been able to confirm his <a href="http://en.wikipedia.org/wiki/Down_syndrome" target="_blank">down syndrome</a>, but they can&#8217;t tell us anything about its severity. As a result, his future is uncertain.</p>
<p>His muscle tone is great, his heart and lungs are perfect, and his hearing and vision appear to be normal. The only thing we don&#8217;t know about is the brain. We are hopeful that he&#8217;ll be alright in that department. After all, he&#8217;s got some smart parents and a super-smart sister.</p>
<p>We&#8217;re still learning about what life will be like with <a href="http://en.wikipedia.org/wiki/Down_syndrome" target="_blank">down syndrome</a>. The only thing we know for sure is that Miles is likely to develop at a slower pace than other kids. He will eventually reach a plateau of cognitive ability and will simply live and operate at that level. He may never be that NFL linebacker I was hoping for, but he could still be an athlete, artist or musician. If his plateau is high enough, he may even surprise me and become a scientist.</p>
<p>For now, he&#8217;s just Miles. He&#8217;s cute as a button, and he poops like a monster.</p>
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